Question about new drug
Oct. 22nd, 2005 05:48 pm![[identity profile]](https://www.dreamwidth.org/img/silk/identity/openid.png){kind=small}
jadedmosaic.livejournal.com posting in ![[community profile]](https://www.dreamwidth.org/img/silk/identity/community.png){kind=small}
multiplicity_archivesHi This is Shelby , Darby and I were hanging out . Tiea is a sleep again the fever is going down but were all falling asleep every few minutes . We've been nodding off at work and at the computer at home , and feel we could sleep for hours .
This all started all this eccessive sleeping after being given a drug called Cymbalta or dulexetine HCI , we were given it cause Tiea has Lupus which causes chronic pain . We were doing well with a TENS unit but the T said he had three other PTSDers who had chronic pain on this and they were doing well .
At first we were to take 1 a week then tapper up to 2 a day when we got to 2 we couldent get out of bed so he lowered it to 1 and we could move around more. we had no appitite and lost 40 pounds in a month so kinda liked it but now we cant stay awake . So now we are taking one every other day. On the days we do not take it were not sleepy as much or as feverish ., It says one has to taper off it so we were going to do one every other day a week then stop .
This drug is only about a year old But Tiea is a Zombie even without fever and now us .
Has anyone heard of this drug? and this effect ? We looked it up and it doesent list excessive sleeping were also sweating all day and chilling. Generally a Lupus flare up does not cause sleeeping like this . We goggled it and could not find much . Thanks Shelby and Darby
This all started all this eccessive sleeping after being given a drug called Cymbalta or dulexetine HCI , we were given it cause Tiea has Lupus which causes chronic pain . We were doing well with a TENS unit but the T said he had three other PTSDers who had chronic pain on this and they were doing well .
At first we were to take 1 a week then tapper up to 2 a day when we got to 2 we couldent get out of bed so he lowered it to 1 and we could move around more. we had no appitite and lost 40 pounds in a month so kinda liked it but now we cant stay awake . So now we are taking one every other day. On the days we do not take it were not sleepy as much or as feverish ., It says one has to taper off it so we were going to do one every other day a week then stop .
This drug is only about a year old But Tiea is a Zombie even without fever and now us .
Has anyone heard of this drug? and this effect ? We looked it up and it doesent list excessive sleeping were also sweating all day and chilling. Generally a Lupus flare up does not cause sleeeping like this . We goggled it and could not find much . Thanks Shelby and Darby
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
no subject
Date: 2005-10-22 11:32 pm (UTC)http://www.google.com/search?num=20&hl=en&lr=&safe=off&q=duloxetine&btnG=Search
This would explain why it knocks you out. It is not really for chronic pain. It is an anti-anxiety drug, and those are notorious for causing the effects you describe.
So he's an MD also? (authorized to prescribe medicine) Jay says go with the TENS unit. Our chiropractor always uses that on our back.
Nobody was depressed till the gals took the drug
Date: 2005-10-23 02:44 am (UTC)We've been telling the ladies something was up with that drug. Marty and I are alert but most of the ladies were ok thinking on it, cause any drug that makes chics lose allot of wieght... there going to keep taking. Right ?
Tiea takes predisone for Lupus and planquinal, but the T thought for Chronic pain with Lupus and Fibromyalgia that kinda go together this drug would be good .
He is not a MD but can make a referral to his partner for medication . The first thing we noticed was the gals stopped eating and got body depressed ( not head depressed ) but there bodies were moving slower. We weren't raiding the fridge at night . But they were all needing more and more sleep and the kids stopped playing as much .
Tiea was a little anxious around the anniversery of her Moms death . October in general is a not so good a month for her .
But I clued Darby and Shelby in when I noticed the days we did not take it they all stayed awake and had a appitite . Like last night Tiea woke up and wanted Chinnese then we did . But for the longest time only us guys were eating . The T said the drug was developed for nuarlgia pain and depression for chronic pain . A dual drug .
Its messing with our ability to stay co concsious so we never needed it cause we have a TENS unit . So after reading up on it were going to get a schedule to taper off. We left these links where Tiea will see them , we e mailed her the link you sent .Thank You allot Joseph & Darby & Marty ( Tieas asleep again ) Just a thought ...
The gals think we ,the guys are parinoid of the T but there has been something way unprofessional about him a long time .
Tiea knows this in her heart being a Social Worker . If she was counseling anybody else she would tell them to pleez get a second opinion or lose the T , But she second guesses her own decisoions about us and especially in regard to herself. She has believed in him a long time .
Re: Nobody was depressed till the gals took the drug
Date: 2005-10-23 01:18 pm (UTC)NSAIDs and steroids are recommended for pain management for such conditions, not an antianxiety and antidepressant drug. Let your body doctor (rheumatologist, immunologist, etc) focus on anything related to that, your T should have been professional enough to know to stay out of that.
Re: Nobody was depressed till the gals took the drug
Date: 2005-10-23 09:49 pm (UTC)He ( the T) never got involved with the Lupus or fibromyalgia before but suddenly he was like Oh "I have two other patients taking Cymbalta for Fibromyalgia and depression from pain I think it would be good for you ". The thing with me is I am very sensetive to meds and tend to get more depressed on anti anziety or anti depressents . I get the opposite effects I think its a immune system thing . Do you do that too?
I was amazed I ,lost 40 pounds but I also stopped eating totally. When most drugs had made me gain weight so this seemed so good . I know in my heart this is not the way to lose wieght properly . Meanwhile we were all sweating and chilling daily and having fevers of as high as 103 and falling aseep sitting up and we all lost so much communication. First time since the 80's I had no idea what The Mosaics were doing or myself. Like genuine lost time .
The guys in my family keep saying he , the T did this deliberatly cause we were backing away from therapy feeling I & we had done all I needed for now . The T threw us into a spin with this drug. I am having bizzare nightmeres too Feels like anesthsia. Only I never get out of Recovery .
I noticed I have split my lip open in my sleep from teeth chattering. I really think I had a couple seizures so I am tapering off every two days taking one for a week than every three days than off. But you are so right . He had no business referring me for Lupus related stuff.
Before we got diagnosed with Lupus back in the 70's the doctors thought we had a mixed connective tissue disorder too or like a cousin to Lupus we just had to wait to be diagnosed the right way . Plaquinal seems to work well for us as long as we get our eyes checked regularly. Like I need glasses now, for computer and reading and driving . How is it working for you ? Have you ever been on Predisone ? It can be nasty but it works for big flare ups . Wow my primary did not even know we were on this drug Cymbalta , she was so surprised that we even tolerated it but we did NOT Thanks a bunch less drugs the better is my motto. Peace Tiea
Re: Nobody was depressed till the gals took the drug
Date: 2005-10-25 10:12 pm (UTC)re: plaquenil
The eyedoc gave us a little grid printout we keep on the fridge. The kids like the eye "test" he gave us - look at the grid with one eye, then the other. So we go in every year to the eye doc. We're supposed to go in right away if the grid ever looks funny.
We haven't needed oral steroids. Been fortunate enough to avoid organ involvement. The rheumy gave us a steroid shot a couple times for flareups that were doing big pain to the joints and big muscles. One time it did nothing, the other two times it was wonderful for pain, although we got water bloat like you wouldn't believe.
If you're UV sensitive, this is wonderful!
http://www.sunguardsunprotection.com/
We do find that we have a LOT more immune trouble when we're in conflict with one another - learning how to work together has done very good things for our body.
Re: Nobody was depressed till the gals took the drug
Date: 2005-10-26 05:04 am (UTC)I will be 17 in a moonth .Tiea is sleeping again . I want to practice Holistic Medicine cause I have seen all the problems Tiea and others have had with Lupus and all of natural herbs work just as well if not better .
Occassionaly its real good to go get yourself a good detox for your liver and intestines it helps clear the Shakras and is real good for people with Immune or auto immune disorders. Also ecchenashia is very very good and, Stay away from Potatoes as there inflamatory to thr muscles . Also stay away from fermented foods like Cheese and mushroms, olives , Vinigars and wine . Thanks for the sun screem link . We get are daily dose of fresh Vitamin D early in the am when we cant be harmed by Sun.
Tiea has had two cortisone shots for huge flare ups too. Were not sure if we get so many side effects from meds if its from Lupus or being many people . Everyone acts differnt . But were anyaphelptically allergic too sulfa also thats a big auto immune thing .
I think personally like DID they will find Fibromyalgia and Lupus and other Auto illnesses are a Brain allergy to the body ( the brain rejecting singnals from the body and attacking the organs ) The brain is mixed up . Thats my theory and I am sticking to it.
Did ya ever get brain Fog? Try Vitamin B and Fish oils w/bl Elaine
Re: Nobody was depressed till the gals took the drug
Date: 2005-10-26 01:01 pm (UTC)We didn't have troubles with cheese and potatos, but we have other foods that are on the no list: green tea, alfalfa sprouts, and some of those herbal suppliments that are for getting the immune system all excited. when ours gets excited we hurt. :P
Sunlight screws us up badly - we got really sick on long car trips until we realized that was what was happening. Several of us resented having to "bathe" in sunblock all the time so that laundry additive was a great thing for us.
Someone here found an echinacea honey that is YUM! We grow the flowers in the yard and they are pretty.
We got the fish oil pill with the vitamins. it is really nasty sometimes after we eat it - we'll get "tuna burps" that only a cat would like! eew! but it makes joints happier too. If we skip it for a couple week we can really feel the difference.
Don't really get brain fog, though sometimes when we're not communicating well outside people will assume we're just a little forgetful.
We see our autoimmune problems more as a reflection of "as within, so without" - when we're stressed and either holding resentments or butting heads with one another our body systems fight with each other too. Our body's health has improved dramatically since we shifted from a "control" style of management to a "mutual respect" style. No one gets everything they want, but we're all a lot happier knowing we're heard.
Can you buy a TENs there?
Date: 2005-10-23 03:04 am (UTC)This way you get the benefit without having to wait to see the Chiropracter . At least its that way on the East Coast .Insurance covered it.80 % at least .
Joe and Marty like the intesity around 7 and burst cycles using a criss sross pattern on the back . We stick it in are pocket tuck in the wires and every 30 minutes turn it off and on for bad days. The gals we like a intesity around 4 and a modular continuous cycle . The kids giggle from it and play with the program's . Nobody was avertly depressed or anxious till now . Thats why we wonderd why the t interruppted a good thing and made us zombyish and feverish, sweating and chilling .
I myself have mentioned ,I think Tiea is going through a grieving process, knowing she has to say buy to the T and we might get outed or demoted at work . Tiea resists change and stays in bad relationships way too long, this being one even if its hurting her . Shes incredibly loyal. We love that and dispise that about her at times . Peace and Thanks Hi to all Shelby
Re: Can you buy a TENs there?
Date: 2005-10-25 05:15 pm (UTC)Re: Can you buy a TENs there?
Date: 2005-10-26 04:47 am (UTC)If I practiced medicine I would charge people on a sliding scale fee and people that had no insurance I wouldnt charge at all. Wow you must have lots of $$$ to afford the Chiropracter though . There is a Company called "Empi" That makes the TENS units and they can be bought directly from them . Once I find Tiea paper work I will give you the 800 number. I think there like around $700.00 thats not too much for relief. If your Chiropracter says its of value to you in traetment You can get a discount.
Also does your Chirpractor Release your Shakra's and clear them out with Streaches? That will clear thep ain centers This is why I like Holistic Medicine . There is certain Breathing Techniques along with movements sorta like TI CHI that will open up blocked tense nerves.
I met Jeff he seems real decent . Tiea let me go to work with her riding gunshot , she woulednt let me drive . I could have passed every car and got us there in a cinch. I am very much a offensive or aggressive driver. NOT Rd Rage though I've been practicing for when I get to 6 lane expressways in California but Shelby said "The freeway is usually stalled in big cities" . Tiea is letting me have my Chat time so I am lookng forward to meeting other teens although I feel like I am much older than almost 17 most days . Please tell Jeff I say Hello amd I still want to hear about His Goverment cause I am going to be voting soon and want a better Goverment and maybe we could make that kind of Goverment on the inside world since were stuck with Bush on the outside .
We belong to a group called MoveOn .Org I have a Kerry T- shirt . I would vote for Bill Mahar if he would run . w/b/l have a nice day Elaine
Medical and Govt
Date: 2005-10-26 05:12 am (UTC)Your plan to use a sliding scale sounds like our old physician back home, boy do I wish we could still go to him for illnesses and that. He believed that the client always knows more than the doctor. He was raised on a farm in Illinois same as we were. Gabe used to get very near the front when we went to him.
$700 is astronomical for us at this point. My chiropractor only charges $15 per session. It is straight chiropractic. Chakra release and other things of that nature do not work on us. Rather I should say, we can't tell if they do or not because we feel nothing and have never had pain relieved thereby. What he does do is deep tissue massage, which is extremely valuable to us. It's akin to Rolfing.
Jeff sends his greetings. They are battening down the hatches for an early winter in Myrtle Grove where he lives about a mile and a half from Gabriel and Jess.
We may post something at
Chic hung herself on this
Date: 2005-10-23 04:12 am (UTC)I was just thinkin man oh man and the T lied AGAIN and we were fine , I feel like smakin Tiea awake and havin a Talk with her about this dude. A serious TALK ... from this link a 19 year old chic hung herself on this crap doing a clinical trial for money.
Most Chics dont hang themselves. This must be some heavy sh**t and its time delayed so it hangs around . This is very bad for our kids and Teens arent suppose to take this crap cause they can get suicidal which of course we have a few who are angsty anyways .
Thats it were collectively waking Tiea up before she sleeps the end of the year away . Thanks Joseph
Re: Chic hung herself on this
Date: 2005-10-25 05:19 pm (UTC)They should have tests to determine how a medication will affect a particular person, but they don't believe in that. A few years ago, we knew someone who did very well with small doses of Prozac. They took a course of it, about six weeks, and tapered off and were fine. At the same time, we knew someone else who was depressed and they put her on Prozac and she got more depressed and tried to throw herself out a window. She had never been suicidal before. They had to put her in the hospital. Took her off the Prozac and she was fine. She was lucky. Many times, they decide that if you have a negative reaction to a medicine, that means you need more of it, or that you need to be on another medicine in addition to the one that's messing you up.