How Many Dx?

[nomads-quill.livejournal.com]

Ok, so I'm new here. Hello.

My T from ages ago was talking about some things she is doing with new therapists on rotation in her clinic. She is really trying to stress catching this Dx earlier than is standard. It got me to wondering...

D.I.D. was my 5th or 6th Dx. Historically, folks like us go through a lot of Dx before "they" get it right.

She even asked me to write something that she could use in her teaching to help illustrate for new Ts how important it is to see the signs. How my life could have been a bit better-slash-different had the many Ts before her noticed all the signals.

And I guess I am curious as to the responses you guys might give if asked such a question.

I apologize if this is chunky or not clear enough. My head is loose and it's hard to stay on topic just now.

Comments

[elenbarathi.livejournal.com]

My main goal in school was to pass unnoticed, or better still to escape, at least in mind. One would think that sitting still and not saying anything would be 'safe behavior' - at least that one would be safe from the teachers thus - but they were constantly yelling at me, banging yardsticks on my desk, etc. because they thought I wasn't paying attention, and one went so far as to drag me from my chair and shake me. *shrugs* What can one say; school is jail for kids, and the "social rules" are pretty-much the same as in any other prison.

By the time I was 16, and with a lot of pressure encouragement from Kír, I'd started speaking up and fighting back, but still without apparent emotion. People find that quite intimidating, which was a good thing under the circumstances, but then in later years I had to learn a different, non-intimidating strategy. So I do the whole "pass for human" thing, which is essentially roleplaying, but using Miss Manners' Guide To Excruciatingly-Correct Behavior instead of the Dungeon Master's Manual.

I don't see any good reason to let people know when I'm in pain - after all, why do they need to know? If they love me, they're just going to be worried; if they don't love me, they've got no reason to care; in either case, there's probably nothing they can do about it. I have no idea whether or not anyone believes me when I do tell them - it seems to me that everyone in this culture dissembles pretty-much all the time, hiding their true thoughts and feelings as best they can while expressing whatever contrived ones they think are most likely to get them what they want, so nobody ever knows what anyone else really thinks.

[shatterstorm.livejournal.com]

We've found that when we're willing to let people around us realize we're in pain that it is a way to recognize we've developed a level of trust toward them. Too many people attack if they think you're weak or injured.

We've had flashbacks in the middle of business meetings and no one outside realized. Body control can be a useful thing.

We did have one oddly clueless coworker who was concerned we might be depressed when we were actually very ill and on longterm care precription painkillers. He just didn't comprehend how being in continual pain would make someone less than chipper. :P