[identity profile] tir-nan-og.livejournal.com posting in [community profile] multiplicity_archives
I haven't been able to hear anyone else in our system for quite some time. Generally, our communication with eachother is not great, but I do know that others in my group have been coming out less and less. I can't seem to reach our inner world, either.

Part of it, I think, is that some things have happened that have left us feeling exposed and unsafe. That, I can understand, although it grieves me. The other part very much befuddles me. I'm getting ready to go back to school to get my Masters degree, and I wonder if I'M blocking everyone from coming out. Most people in our system are teenagers, and they way they act can diverge wildly, as do their interests. There is one person in my group (Hannie) who desperately wants us to have a respectable job, and I know she'll be cooperative and helpful. Everyone else is somewhat too self absorbed to care about a common goal.

I don't want to be tyranical or repress everyone, but on the other hand, it is very, very important that we get this degree, get a real job, and stop being dependent on SSI and services. (we get developmental services..my official diagnosis is Autism.) We MUST pull together on this one, and the hard truth is that if someone wants to come out and be all teenage and flaky when we need to go to class or study, that just can't happen.

Can anyone who is getting a degree please tell me how you manage system dynamics when doing so? Is everyone in your group pulling together and helping, or are there people who don't want to get involved, who have to stay inside until all studying is done?

Date: 2005-04-28 06:12 pm (UTC)
From: [identity profile] squnq.livejournal.com
I cannot comment on school since I never even graduated high school, but I am a business professional, and we came to an agreement a long while back where we decided that it was imperitave that I (being the rather dominant of our group) have total control when working, as we have to be completely quiet about being multiple lest we lose business. Centering the business as the most necessary thing in life (as it provides the livelyhood) worked to keep everyone else quiet since none of them have any interest in my field or the work, although a couple help on occasion if their talents are of use.

Date: 2005-04-28 06:19 pm (UTC)
From: [identity profile] kangetsuhime.livejournal.com
Both myself and Lu want to do the course we're going to be doing, so I hope we won't have many problems. Chloe wouldn't interfere in that. We all tend to work together thank goodness.

Date: 2005-04-28 06:25 pm (UTC)
From: [identity profile] shandra.livejournal.com
We aren't currently getting a degree but we handle a professional job and have taken classes.

I think it's a really good idea to get everyone possible on board with your goal, whether it's "please support me" or "hey this will mean better goodies for all!" We have a long standing tradition that when we're in school, for every week of classes attended, we get a treat - an hour at the favourite bookshop; an ice cream, whatever. It's a bit manipulative but it does give the idea that rewards are shared as well as work. :-)

I'd distinguish, too, between behaviours that really are flaky (not showing up for class) and behaviours that are annoying but still get you where you want to go (showing up for class flamboyantly dressed and doodling on your private notes). Sometimes a little freedom goes a long way. In our classes we have made comments to each other on our notes, and I usually distract the kids with a "doodle page" if needed. Some scans of that are actually on our (woefully out of date) site: http://www.multiplicity.ca/essays/handwriting.php

I also think it's important to find some balance in your schedule so that people have some free time that they can count on - whether that's Friday night or Sunday afternoon or whatever. The trick for us there is "count on" - it's sacred time for them, so that they then can respect the study hours.

We actually write these things in as commitments to each other on our calendar (as well as class prep time, etc.). Otherwise people tend to get resentful and then of course it *always* comes to a head just before an exam or something like that. :)

Also this is just what we've found - in the past we were flamboyant procrastinators and then pulled off brilliance at the last moment (or not :)). That model just doesn't work for us any more - making regular study time and not getting into where all-nighters are necessary has been key in both work and school. It's possibly that in the past that kind of panic was needed to focus, but having a more regular, smooth schedule without the highs & lows seems to keep us more on track.

Date: 2005-04-29 01:49 pm (UTC)
From: [identity profile] shandra.livejournal.com
It's hard if people don't get time, but sometimes it does work out that way.

It depends on your programme, but we don't find the need to present singularly in classes as long as people are there doing the work & not messing about.

Obviously something like a counselling workshop would need something like that, but the straight lectures - eh. Who cares if you present singularly? I say that just because I think if you set your standards too high it may be that much harder.

There's no university provost following you around making sure you're not someone else... and in fact most students display varying levels of craziness anyway. :)

Date: 2005-04-28 07:25 pm (UTC)
From: [identity profile] zaecus.livejournal.com
We've just become a bit more autocratic and inflexible about the "don't do anything that leaves lingering effects" guideline.

I can't just give upno matter what's going on with me psychologically or emotionally, and Jacob doesn't get to use the vocal chords or arms when someone has turned him into a white hot ball of rage. It makes us look for some creative solutions.

I keep expecting one of the people we interact with on campus to get tired of dealing with us and things to unravel, though.

Date: 2005-04-28 09:03 pm (UTC)
From: [identity profile] saturniakitty.livejournal.com
G and I are the only ones interested in getting our degree, and the rest just stay out of the way (or complain loudly that they're bored) when we're doing work.

In theory

Date: 2005-04-28 09:47 pm (UTC)
From: [identity profile] spookshow-girl.livejournal.com
We assign classes. However, this doesn't mean noone else is present, or that they are completely at the forefront. Memory can get fudgy sometimes, so we try to make sure that the person who is assigned the class is at least somewhat present during the class in order to keep a clear thread.

This has varying degress of sucess.

This is of course, our second run at college. The first time we were not co-aware, although there are indicators of who was doing what when.

School has always had a problem with keeping our attention. Rather than having completely irresponsible and responsible people, we have phases where one is able to handle responsibilities for a time better than others. This isn't constant however; we have a habit of pushing ourselves too hard, and it tends to be a matter of which one of us is not currently burning the candle at both ends.

I maintain that we are not workaholics, as we have been accused of being, repeatedly.

--Me

Re: In theory

Date: 2005-04-29 11:42 pm (UTC)
From: [identity profile] sethrenn.livejournal.com
We've had a few people tell us that we seem to be incapable of listening to anything that's said to us. I think it's mostly to do with our distractibility/sensory issues, though.

Date: 2005-04-28 10:39 pm (UTC)
From: [identity profile] idianshire.livejournal.com
When we started our degree, years ago now, we had little communication and the concept of cooperation was a distant memory, let alone community. I'm still not sure how we managed to make it to most of our classes. Having a friend that took most of the same classes together helped, as we would wander off to class together, so that at least got us there. Maintaining awareness could be difficult, especially with those boring monotone lecturers that makeit difficult not to tune out. I don't know how many times I left lecturers with notes of pretty little flowers instead of anything productive.

Finally swallowing our pride and getting help from Disability Services helped. But the thing that worked the best we found was developing our own communication skills and learning to work together. For instance we would let Mouse sit and watch the ducks on campus but not when we were rushing off to lectures. She didn't believe us at first when we told her that once a day during one of our breaks she would have at least 30 minutes to watch the ducks all to herself. I can't say I blamed her for being disbelieving, we hadn't been the best until then at letting other people take time for themselves, especially in public, appearances seemed of paramount importance back then. But we kept our word, and for the first month rain or sun we would watch the ducks. After a while, I think when she worked out we wouldn't go back on our word the duck watching turned out to be a once a week thing. Now she tends to ask if we have time for her to enjoy her ducks and we say yes or no depending on our schedule. The reason for this long and probably boring paragraph is twofold. One I believe you have to allow those that aren't really interested in school to have something of their own. I don't believe you can say, this is important to me, so you have to do it and then not let others do what is important to them. The The second part is to keep your word, if you say, I have to have this hour to go to a lecture but afterwards you can do whatever, then after the lecture you can't change your mind.

There are a lot of us that don't give a damn about our education. Most just don't bother paying attention to this world when we are at school. One turns up to flirt with Lex the Coffee Man, and drink coffee, some hoave friends on campus, but most just go about their own lives not paying much attention. When we picked our papers we did get together, those that were even slightly interested in getting our post grad degree and picked the papers that would be of the most interest to the majority of us. Friday is still a little peeved at having to give up her computer science papers, but agreed to the proposal of going for post grad in Education. She takes time to do personal learning during the evnings or weekends. But most people that pay attention to our life in this world are supportive of our education, we all know it is soemthing we not only want to do, but that it will be of benefit to all in the long run. As long as no one else gets penalised, losing their time or interests it seems to run smoothly. There are hiccups along the road, but that's normal. Everyone misses a class every now and again,

Date: 2005-04-29 07:18 am (UTC)
From: [identity profile] idianshire.livejournal.com
WE actually don't want to teach children, we dropped out of teacher's college early on when we realised teaching children wasn't our thing. NOt because of our multiplicity, the job itself didn't really suit anyone here although a few of us love education. We woudl like to get into research, and perhaps become a lecturer. We aren't that worried about switching as it, for us is, or can be a conscious activity. When we don't have responsibilities who runs is very casual but when there are responsibilities such as jobs we work well to make sure who ever is around is appropriate.

As for keeping up appearances, well for us it was a big deal in developing the sense of community we have now. Also having issues with hyper-viligance we had to realise that not everyone in the world notices everything about everyone. We came to realise most people are too wrapped up in their own lives to even notice us.

Date: 2005-04-29 01:56 pm (UTC)
From: [identity profile] shandra.livejournal.com
I wonder if that letting go of appearances having paramount importance paved the way for better communication.

I should have read down. :) This has been spectacularly true for us. As the Shire said somewhere, most people don't really notice, at least not to any degree that is terrible.

I do agree with you that if you want to be a teacher you'll have to work it out (we taught for a few years) - but part of getting to there may be spending some of your education time being your individual selves, so that you each have an opportunity to develop whatever skills you need to present in a way that will work for you and your students.

Date: 2005-04-29 07:17 pm (UTC)
From: [identity profile] shatterstorm.livejournal.com
We've learned that most people have no clue at all when it comes to recognising multiples. If they've heard of the idea at all they're thinking Hollywood style switches with thick accents and dramatic body language or demonic possesion. :P We have friends who are professional counselors who haven't spotted us.

We've noticed that selves-aware multiples seem pretty good at spotting one another. It makes for some really interesting conversations until everyone is comfortable. ;) We did a little gentle education with one of our friends who we expect is a multiple but isn't selves-aware currently. He lost time and we discussed some of the possible causes. The lost time involved about 1 1/2 hours where he'd done some driving and apparently bought and eaten fast food.

As long as you don't have someone with a strong accent or seriously unusual body language front unfiltered, in our experience most people just assume you're a little more moody, expressive, absentminded, or eccentric than the average joe.

Date: 2005-04-29 11:02 pm (UTC)
From: [identity profile] idianshire.livejournal.com
Hell even if you have strong accent changes people don't seem to notice. We have a friend who is multiple and the people in that system have very broad and definite accents. No one in her life ever questioned it, all they seemed to say was oh that's so cute.

Date: 2005-05-01 02:06 am (UTC)
From: [identity profile] idianshire.livejournal.com
I think she gets away with it because she grew up in London, so the irish and cockney accents people just put down to that, although the majoirty of the time those accents aren't around. Still I think most people are more likely to use any explanation other than multiplicity, from my expereince multiplicity is hardly even in people's awareness.

Date: 2005-04-29 03:15 am (UTC)
From: [identity profile] sethrenn.livejournal.com
If you have a diagnosis of autism, you can probably also get the disability services at your school-- if they have any, though most schools do nowadays-- to help you out. They might be able, for instance, to get your instructors to tape-record lectures for you. We're permitted to take our exams in a separate room with extra time.

We try to assign classes sometimes too, although this doesn't always work out in practice. There are a few of us who are just not compatible with school in any way, shape or form, and we can't always switch on cue. The most important thing we found we could do was to be organised-- get a book that lets you keep an agenda for each day; write down everything important you need to do in it, from paying bills to homework. That way, if 'important' stuff doesn't always stick in the common memory banks, anyone can refer to the book to figure out what they need to do today.

Date: 2005-04-29 01:11 pm (UTC)
From: [identity profile] shatterstorm.livejournal.com
If the one that writes down everything is taking notes, have you considered taking a highlighter and going over those notes? Recording and sharing notes with other people both work great btw ;)

Date: 2005-04-29 11:47 pm (UTC)
From: [identity profile] sethrenn.livejournal.com
Our diagnosis is Asperger's. Still haven't quite figured out the art of keeping or writing notes, though. It took us until sophomore year of high school to learn how to write notes in class (that is, on the subject material). I'm the one who's a real bug on writing things down because it seems that otherwise, we have no way of keeping ourselves organised or remembering what we need to do.

Date: 2005-05-02 09:26 pm (UTC)
From: [identity profile] sethrenn.livejournal.com
I didn't know your (in the group sense) diagnosis was Asperger's. There certainly seems to be quite a few systems with that diagnosis..the discussion pops up occasionally in the Asperger's community also. I would really be interested to know the reason, which I'm sure is neurological.

*nod* We seem to have more in common with most of the people we know labeled 'high-functioning autistics' than 'Asperger's,' but if you didn't have a speech delay in childhood they can only diagnose you with Asperger's, as I understand it.

Date: 2005-05-03 04:11 am (UTC)
From: [identity profile] sethrenn.livejournal.com
I'm not really sure that there is a hard and fast Asperger's/Autism distinction, personally-- I think, generally, it's the same 'wiring' with effects in greater and lesser forms. It's true doctors have different standards-- speech delay is the distinction I hear being most often used; IMNSHO, it's a rather arbitrary criteria, because as others have pointed out, it's often impossible to pick the ones who had a speech delay from a group of 40-year-old autistic people.

Parents also vary widely in their willingness to have their children diagnosed-- at one end of the spectrum there are some who'll drag their kid from doctor to doctor until they get the diagnosis they want; at the other end, there are those who avoid psychologists/psychiatrists/neurologists completely, for whatever reason. Our birth family was closer to the latter category; it was considered shameful to have a 'child with a problem.'

Date: 2005-04-29 07:01 am (UTC)
From: [identity profile] pleiades-rising.livejournal.com
Oi, it can get confusing sometimes, I know. I've always wanted to be a doctor, but Afiel is more into theology and literature and that sort of stuff. I wanted to go to a university for the whole of my four-year study before heading off to med school, whereas he wanted to do the first two years at a community college.

Went one semester to a university, but it caused too much conflict, so we dropped out and plan on starting the community college in the summer... as for our conflicting interests, I am going for med school while he takes the minor in some sort of philosophy... thing. We are lucky to only have three people in our system, with one of them an undecided child, or else it'd get pretty confusing. I'm guessing double majors and all that stuff X_x

Date: 2005-04-29 01:07 pm (UTC)
From: [identity profile] shatterstorm.livejournal.com
We've got two bachelor degrees. Several of us were interested in school, and for the ones who weren't, we arranged things so they have time to do what interests them.

There were some real tense times, like when one of our artists decided that she was going to paint TONIGHT and we were trying to study for a chemistry and a math exam the next day. She ended up getting half the evening to do her thing (we framed the painting, a lovely 3 x 2 black and white of a dragon) and we took a nice nap the next day after the tests.

Our notes from then are a fascinating mix of styles. And the doodles can be hilarious. Looking at them now we're very amused that our front at the time was in denial. Even though she'd "ask" the voices in her head during exams when she couldn't access the information or daydream and let her hand write out the answers. ;) We also had note-buddies, other people in the class that we'd share copies of notes with. Singletons miss writing down important stuff too.

We had a rule of not studying more than two hours without a break. This kept us sane. Pay attention to body care - food, drink, sleep, etc are very important.

Idianshire's tale with the ducks is a very powerful tool. Trust and respect among yourselves will get you everywhere. We'll do activities that we know will coax someone out when we can tell they're unhappy but they aren't communicating much - play a video game, go to the park, eat a favored food, that kind of thing. It is a way of reminding them that we care. And simple things, like stopping for a few moments on the way to a class to admire the oh-so-sexy motorcycle parked outside the building does wonders for making nice with some of the teens.

Date: 2005-04-29 06:47 pm (UTC)
From: [identity profile] shatterstorm.livejournal.com
You know, if Hannie deals with the outside world often enough, something like running a small eBay business might work out well as a sideline while you all are in school. A small mail-order style gig can be done at home - don't know about your son, but one of my friends with young twins has found her kids love to "help" her open, wrap, and slap labels on packages with her eBay used clothes and toys business.

Date: 2005-04-29 05:26 pm (UTC)
eide: a knitted mesh (Default)
From: [personal profile] eide
i think quite a lot of retuners to education enjoy mixing with and acting more like older teens/youger twenties - may less at post-grad level but a bit of presenting as a teenager will probably be fine/unremarkable.
We are in very part time education and i agree with what others have said about gettuing eveyone to agree to co-operate and making some alterantive time/space for the people who aren't into eduation.
If there are a lot of returners on the course there will proabaly be some support around study skills etc as well as the disability-specific support

Date: 2005-05-01 03:00 am (UTC)
From: [identity profile] forest-house.livejournal.com
I'm still working things out so I'm not sure if what I'm saying here is 100% accurate. I don't have any control of who is out and who is not (which I'd like to learn if possible) but fortunately all my regulars are adults and relatively responsible.

(This explanation may get confusing, 'cause none of us have separate names - at this stage anyway). Initially we started a degree in Naturopathy (about 7 years ago now). We had to give that up due to bad health, but later began a bachelor of arts in creative writing (which we're still doing). Now as far as I can tell, it was one of us who badly wanted to do the naturopathy, and the rest of us were supportive of that because it seemed like a good career. When the health took a turn for the worse, we kept trying to struggle through it, until the one who'd originally wanted to do it was able to admit it was a lost cause.

Beginning the BA was a compromise, but all members are happy with it. It's an interest we all share. However, some members are better students than others, some tend to get distracted easily by the other stuff they want to do. As I can't control who's in and out, plus the recurring health problems, we all feel that our time to do the stuff we want is limited. THAT is probably our biggest problem with working together.

However, we now do our studies via correspondence and the internet and only part time (fortunately the university allows for this), so it's easier to get ahead and catch up when necessary. As long as the health stays stable we're managing pretty good on the whole.

Date: 2005-05-02 09:07 am (UTC)
From: [identity profile] shatterstorm.livejournal.com
I don't know if this is common experience or not. As we've gotten better at communicating with one another and treating each other well, our body's health has dramatically improved. We've got some kind of lupus-like autoimmune issues that were becoming disabling. Now the only signs of it in our life are being sensitive to getting enough sleep, and taking our plaquenil and vitamins regularly. Our rheumatologist thinks it is a minor miracle. ;)

Date: 2005-05-02 09:29 am (UTC)
From: [identity profile] forest-house.livejournal.com
it would be interesting to find out if this is common... how have you increased your communication?

that's wonderful that your health has improved so much... i can kinda sympathise with the rheumatological stuff... last year i had a scare with that kind of thing, which turned out to be a virus that mimiced the symptoms of arthritis... only lasted a few months, but was very painful... it was enough for me to feel a deep sympathy for people who suffer that kind of pain and disability constantly

Date: 2005-05-02 06:18 pm (UTC)
From: [identity profile] shatterstorm.livejournal.com
Leaving notes, lists, etc for one another. Having art supplies available for the ones into that. Journaling and being willing to share journal with each other. Paying attention when someone wants something and working with them, encouraging communication and sharing the front. Co-presence and communicating directly without having to use the outside have been strongly encouraged. We have a bunch of kids in our group and we've done a lot of work to make sure each one has at least one adult they feel comfortable going to when they're scared/ stressed/ confused. Focusing on finding solutions to our conflicts that satisfy everyone.

We also did run into at least one of us who has a knack for screwing with our immune system - when she's really pissed our body will have a horrid cold within a day or two. We've been working on finding better ways of communicating than that. :P

Date: 2005-05-03 03:23 am (UTC)
From: [identity profile] forest-house.livejournal.com
do you have any tips on sharing the front? we can't do it consciously and would like to learn how

that's interesting about the immune system...i'm prone to allergies and odd reactions to things (that i could use previously quite safely) that come and go without explanation....i've been wondering if it's one of us who is sensitive and the rest who aren't

maybe she's really stressed when she gets like that? that can have an impact on the immune system for some people

Date: 2005-05-04 03:15 am (UTC)
From: [identity profile] shatterstorm.livejournal.com
we can't do it consciously and would like to learn Hrmmm... some of us have always worked well together... but we've "coaxed" one another using favorite foods, art supplies, topics of shared interest. Some of us just plain don't share. Notes are good then. We've also used a pendulum or automatic writing. Spending effort opening up communications helps. When it happens spontaneously, use it - it becomes easier with practice. Sometimes we're like separate people speaking in a room, sometimes we're thinking and feeling what the others are.

Some of us do have different allergic and drug reactions. From the literature we've seen, that isn't unheard of among multiple groups. We've also known singletons who have allergies that change over time.

She's usually very stressed and angry when she's done it - although when we've gotten down to what's really motivating her it has been that she was trying to protect us by making us too sick to do something. She's been very willing to talk with us so she doesn't have to resort to that. One of the benefits of better communication is she gets more of the things she enjoys - she's one of the ones who gets a blast out of dressing up the body and we've been asking for her input when clothes shopping.

Date: 2005-05-04 04:55 am (UTC)
From: [identity profile] forest-house.livejournal.com
looks like we've got a lot of experimenting to do

interesting about the allergic reactions...the mind/body connection is obviously a pretty complex thing

and that's the sort of thing I'm hoping to do. Better communication, allow each of us to have time at the front to do the things we enjoy and so on. I think we'll all be a lot happier and function better if we do.

Date: 2006-12-10 04:52 pm (UTC)
From: [identity profile] rabbitsystem.livejournal.com
We're taking a degree (ought to be working as we speak) and are managing okay. Ellen and I both attend lectures, sometimes together (our joint notes look really odd from fluctuating between handwritings) and whoever isn't actively note-taking gets to make comments. Ellen recalls beng very surprised when rereading her notes and coming across my comment of 'well, yeah, obviously...', becvause she honestly didn't remember that I'd made it.
Work outside of lectures is harder, but we tend to take turns. Having only two taking the degree makes it simpler because we can wing it a bit and whoever feels more up to it can do the work.
I don't know how it works in the States, but here in Britain the unis have a lot of student-run societies - radio, karting, climbing, politics, etc - and we've joined one each. More than three would really be unworkable, though, due to actually needing to do some studying, but if you can do it in pairs or groups that might work?
Looking at the dates this topic is very old, but we found it in the memories and thought we'd give our tuppen'orth.

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